World Hemophilia Day 2021: Significance and Context
World Hemophilia Day 2021 |
World Hemophilia Day 2021: World Hemorrhage Day is a global day to raise awareness of hemophilia and other bleeding diseases. It is held annually on April 17, the birthday of Frank Schnabel, founder of the World Federation of Hemophilia.
Since 1989, World Hemophilia Day is a day in which all blood-borne communities come together to celebrate progressive medical advances while raising awareness and bringing awareness and attention to issues related to appropriate care in the wider community.
World AIDS Day is about uniting the community of bleeding problems around the world. Since the COVID-19 epidemic has a profound effect on people with bleeding problems, that goal has never been more important. The world has changed a lot in the last year, but one thing has not changed: we are still in this together.
According to WFH, more than 315,000 people in 116 countries were reported to have suffered from hemophilia in 2017. Although the disease is relatively rare, hemophilia is a major cause of death worldwide. Lack of awareness of this unusual but deadly condition leads to a diagnosis, which also increases the risk of death. This is why it is important to inform people about hemophilia.
This is the work that WHF aims to accomplish every year on World Hemorrhage Day. Spreading the word about bleeding disorders and their treatment can save many lives and prevent the birth of hemophilic babies. If you have hemophilic or your partner is a carrier, consult a genetic counselor before planning a baby. This will help you to make the right decision.
How Is World Day Celebrated?
People around the world celebrate this day by organizing conferences, workshops, and events to spread awareness about hemophilia and its treatment options. Also, celebratory activities include lighting the red earth symbols.
Types of hemophilia
Hemophilia A - The most common type of hemophilia. It is due to a lack of clotting factor VIII (factor eight).
Hemophilia B - Very rare, only about 20% of people with hemophilia have hemophilia B. There is a deficiency of clotting factor IX (factor nine) in hemophilia B.
Haemophilia C - (also known as plasma thromboplastin antecedent (PTA) deficiency or Rosenthal syndrome) is a mild form of haemophilia affecting both sexes, due to factor XI deficiency.
World Haemophilia Day: 10 Facts You Should Know About This Condition :
If you are injured and injured, you know that the bleeding will stop after a while. The bleeding stops because the blood begins to clot and that is what happens to everyone, young and old, our blood clots and that is like the beginning of healing. But what if we continue to bleed and the bleeding does not stop? This will cause excessive blood loss and lead to a condition known as Haemophilia. It is a rare and treatable disease but is usually not treatable in most cases.
On World Haemophilia Day, let's look at some facts that each of us should know about this condition.
1. There are three types of Haemophilia
Haemophilia has three types A, B and C. It is determined by looking at the thickening element left over from the person.
2. Severity depends on poverty
When a lack of a thickened human substance becomes more serious a person's guilt.
3. It is incurable
Haemophilia is incurable but the condition can be controlled and people can live a normal life after a proper and long course of treatment.
4. Rarest Clot Type
Type Haemophilia C is less severe than A and B. It has also been found that type C haemophilia does not require IV.
5. How Common to Different Root Types
Clot A type, the most common of all is found in 1 in 5000, type B in type is seen in 1 in 25000, and type C in C is seen in 1 in 100,000 people who also occur
6. It's more dangerous for Men
Haemophilia seems to affect boys a lot because types A and B are carried on the X chromosome so girls are not the carriers that carry the disease. While the type of C clot affects both man and woman equally.
7. It Seems Early
The disease can be diagnosed at a very young age. Serious cases can be found after 1 month of birth while normal cases can take up to 18 months.
8. Signs and Side Effects
Hemophilia can lead to kidney disease, heart disease, arthritis, joint pain, muscle pain, weakness and excessive cranial bleeding.
9. The Royal Disease
It is also considered a royal disease and it is believed that Queen Victoria initially transmitted this transformation to various palaces in Europe where it later spread.
10.Women Are Carriers
Women are less likely to be affected by the disease but are carriers of the disease. A woman whose father has the disease can pass it on to her son while he has a daughter where she can also be a carrier.
Hope that, you liked today's article on world haemophilia day-2021.
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